Cancer Survivor Sunday

This blog is about survival.  It lets me vent my daily stories and frustrations. Hopefully my stories inspire others in similar situations. 
This Sunday is Cancer Survivor Awareness. With that in mind I am also sharing the story in video of someones survival of this horrible disease, how they coped, and how it affected their lives and their family's life.
Cancer comes in so many forms, with so many names,  affecting so many lives.  Here is a link to an inspiring, hope filled video of one mesothelioma survivor.  May the video give you hope that you too can get through this.  Thanks to her husband for sharing this with me .  

Leonardo daVinci Painted with lead paint

I am confused. On the History channel last night I watched a program about Leonardo daVinci and his secret messages in his paintings 

At one point they showed a painting started by another person that Leonardo completed. Leonardo added an angel to the painting, using paint different than the original painter.  The program questioned why Leonardo would have used a different paint.

Leonardo used a lead based paint to paint the angel.  The original painter had used some other kind of paint.  When they did an X-ray of the picture that is done to see what is hidden behind the paint, Leonardo’s angel disappears.   

My question, my confusion, is because I understand that lead blocks or absorbs X-rays.  How does the X-ray see behind the lead paint to the scene behind the angel? Why does it disappear?  Am I missing something?  I would think the lead would keep the X-ray from seeing behind the angel. 

Can anyone answer my question?

Mechanical Lift to move a patient

We have a Hoyer manual lift 6 years, since 2006. It is rented from a medical supply house through Medicare, and AARP picks up the difference. At the time we received it Husband was recently out of the hospital from dehydration.  He was very weak.  I used it a few times in those 6 years, but it was more for a secure feeling knowing I could move him if I needed to with no one else to help.

In 6 years I have used it to get him off the floor a few times as I have told in other blogs. I started using it regularly about 3 months ago to put him into bed.  I had been transferring him using the gait belt, but his legs were no longer able to bear weight and a few times we both nearly wound up on the floor. Using it those few times in the past was good practice for now when I really need it every day.

In the last few weeks I use this lift to get him out of bed and into the wheelchair for breakfast at the dining table. I use the Skid Seat to pull him back into the wheelchair. Then from the wheelchair into the recliner where I then use the Bed Sled to pull him into position in the recliner. This is why I make these products, I use them myself.

Later in the day I use the lift to get him out of the recliner to the toilet, with a side trip to the bedroom to remove his brief and loosen his pants. Back into the lift and to the toilet where we maneuver the lift around the toilet getting him positioned over the seat and lowered into position. Our bathroom is not large and there are grab bars installed wherever they were needed. (The bars serve little purpose now). To remove the sling and get him released from the lift means climbing into the bathtub.

Tight Bathroom

Once lowered onto the seat Husband uses the the horizontal bars on the lift to hold himself forward and keep from leaning.  The legs of the lift reach the wall behind the toilet keeping it from moving back any further and makes it pretty stable for him to hold on to.
While he holds onto the bars I am able to assist him and hook up the sling again when finished and ready to get up. Then back to the bed to put on a fresh brief and his pants.  Depending on the time of day he may return to the recliner or sit in the wheelchair waiting for bedtime.
I am so glad this lift is here.

This blog offers 2 suggestions:

1. 1. Have a lift in house BEFORE you need it if possible. This will give you time to get comfortable with its operation. The few times you use it before conditions worsen will get you familiar with its limits for working room, how tight a space you can work in.
2. When using the lift on bare legs, like after using the toilet when pants have been removed, place cloth ( a washcloth will do) under the patient's legs where the sling will be wrapped to prevent the sling from irritating and cutting the skin. I try to keep Husbands pants on his lower legs while on the toilet. Then I pull them up over his thighs enough to allow the sling to go under the cloth.  It is clumsy but more comfortable than having the sling in contact with the skin.

How I got into “this mess”(his words)

June 23, 2012...He is groggy this morning, looking like he could fall back to sleep at the table. He is feeding himself his banana, but needing help with the oatmeal. 

Between spoons of oatmeal he asked me" how did I get into this mess”, spreading his hands over the dining room table.  I was not sure what he meant, still not sure I do.  I asked him to explain.  He said about the house, and all the hassle, was it all worth it.  He did not say specifically his condition. He asked if I own the house. I told him yes.  So I am not sure he knows who I am or where he is.   He finished his oatmeal, and his eggs and bun and juice. He took to his woodworking magazines and seemed absorbed so I went to the computer.

He is still subdued, drowsy. Maybe he will sleep at the table for awhile.  He does that sometimes for a few minutes, sometimes for hours. I have been sitting in my office  for a while now and he has not called me. So he is probably sleeping. I will check on him in a few minutes.  

I have mixed feelings when he sleeps.  I get some “free” time but I cannot go anywhere. I cannot do anything that will disturb his sleep. I can’t get involved in something that requires a commitment of my time and attention because if he wakes and calls me I must drop what I am doing.    

It's time to check on him and maybe go see if there is any mail.  It's a beautiful day, not too hot or humid.  Maybe we'll go grocery shopping later.

Getting Out of Bed is More Difficult

My helpers are here Monday through Friday, so Saturday and Sunday I am on my own.

This being Saturday, I had no help to get husband out of bed.  He wanted to get out of be right away, not waiting for his pills to kick in. The last few days I have needed help to get him up and into his wheelchair. This morning I am on my own.  

This morning he seemed strong enough to help himself a little.  I use his ability to grasp and hold his assisting bars to determine how much strength he has. I got him sitting on the edge of the bed holding onto his support bars.  From this position, on days when he is able, I shift his body sideways onto his wheelchair and  he uses his legs to raise  himself to clear the side arm of the wheelchair. I tried to get him to his chair like I normally do when he has some strength to stand.  I got his tail bone to the chair with him still hanging on to his bars.  I could not get him to stand nor could I leave him alone at the front of the chair while I went around back to try t pull him in. So I tried to push with my knees against his, but he was not able to hold himself up any longer and started to slide to the floor.  I told him to let himself down easy as I pulled the wheelchair out and away from him.  When his tail was on the floor I pulled the chair out the rest of the way and lowered his head to the floor onto a pillow.  

Fortunately I have had to get him off the floor on a few occasions so I knew how to use the Hoyer lift ( a mechanical lifting device) to get him up. I got the sling under him and jacked him up. I jacked him high enough to get his wheelchair under him and lowered him into the chair. We went the dining room table for breakfast.  His pills kicked in about 30 minutes after he was into his wheelchair.  Some days it can take an hour or more for the pills to start working. And sometimes they don’t seem to work at all.   He has been taking these same pills for 14 years. We were told in the beginning that the pills will lose their effectiveness after about 8 years.  So I guess we’re lucky they still work for him.  When they work.

corner filed off so Hoyer can get in

I have been wondering how soon I would be needing the Hoyer to get him out of bed.  I guess it’s pretty soon. I have been using the Hoyer to put him to bed for about a year. And the last 2 weeks I am using it to get him onto the toilet during the day then back into a wheelchair for the remaining hours until bed. Maneuvering in our tight bathroom is the hardest part.  I recently sanded off the corner of the sink cabinet to allow the wheels of the Hoyer to get in alongside the toilet. It helps but it’s still tight. 

He’s reading now. I have the air conditioner on. The cats are running around because it is cool enough to be active. (when it’s too warm they sleep)  I hope he doesn’t decide to go to the shop to do wood working.  Although I might be a good change for me to work at something other than sewing or getting votes for the grant.

Mission:Small Business Grant from Chase, our entry

Will you vote for me?

Today I spent 90% of my time on the telephone gathering e mail addresses so I could send the link for voting for Caregivers Aide for the $250,000 grant sponsored by Chase Bank. I have the grant application completed and in review by my SBA contact before I actually hit the SUBMIT button.

The terms of the grant state that applicants must receive 250 votes on the Mission: Small Business voting site by June 30, 2012. Voting requires logging into a Facebook account. So not just ANYONE can vote, only FB members. If the applicant does not have the 250 votes, their application will not even be considered. So, considering the amount I may win, the hours spent gathering votes  is well worth the effort. 

My main business, besides caring for my husband, is seamstress. I have been sewing my whole life but hung out my shingle, that is advertised my business, in 1999 when I came home to be with my husband.  While I was still working as a bookkeeper at my last job I would repair and alter clothing for my coworkers during my lunch hour.  This was when I realized the potential of using my skills. 

When I started sewing at home in 1999 I started a log book of names, phone numbers and descriptions of the work to be done so I would know what work was still to be done and just what I had to do.  I have 10+ years of logs.  I never thought much about those logs other than their intended use to contact the clothing’s owner when the job was ready to be picked up.   Today I dug out the books from the last couple years and called all my old customers asking if they use Facebook and if so, would they vote for me. 

I started getting hoarse around 4 pm , but what a gratifying day. I called about 100 people, spoke with most, left messages with others.  I received 41 email addresses I will use to send voting information.  The others either have no computer, or do not use Facebook.  This does not surprise me.  A lot of my customers are retired and do not need a computer.  And Facebook is a lot more complicated than it seems.  Some of these customers I have not seen or spoke to since I performed their sewing several years ago. But when I told them who I was and why I was calling they were anxious to help.  And some who did not have computers gave me names of their friends who do use Facebook, friends they would ask to vote for me.   

Brendon Burchard, a motivation and high performance trainer, lists three considerations for living a satisfying, productive life: Have I lived? Have I loved? And have I made a difference in the world, did I matter?    While I am not, never have been the fireball of energy he seems to be, I do believe I can answer all his questions with a satisfying Yes.  Today’s response to my phone calls to customers that in some cases I met only once a few years ago makes it all worthwhile.  I’ll never get financially rich from my sewing business (hence trying to start up this second business that requires a grant) but I’m sure having fun and making some great friends. 

Please vote for Caregivers Aide to help us qualify for the grant - please follow the link below:

The terms of the grant are that I must receive 250 votes on their voting site by June 30 before they will even look at my application.  To vote you will need to log into a Facebook account.

I will use the grant to purchase materials, labor, and machinery needed to go forward with a distributor that has expressed interest in my products, and all the required packaging etc.

Here is the link.         https://www.missionsmallbusiness.com/          

Go to “Log in & Support”

When you get to the voting site you will need to scroll down and type in the company name:     

Caregivers Aide, LLC        Pennsylvania                    Auburn                  

and hit SEARCH.  If you have entered the information correctly it will give you my full address and how many have voted. On the lower right there will be a VOTE button.  Click that button and you are done.  You can then share this with other Facebook users, or just forward this email to anyone you think might vote for me.

I value and appreciate all your efforts on my behalf.  And please ask your friends, family and co-workers to vote too.  The more votes the better.

Thank you.

Pets Need Caregivers continued

Pets need Caregivers too - continued

In September 2011 Tippy wanted to “live“in our van.  We had a dog years ago that did the same thing near his death.  He wanted to live in the van we had at that time.  Now when Tippy wanted the same thing I knew it was not a good sign. In the cold months of November, December, and January  I had an electric space heater hooked up to an outlet in the garage with a long extension cord so she would not be cold in the van. Some mornings it was 20 degrees!  I would start the van, turn on the van's heater, and plug in the electric heater at 6 am so it would be warmer when she came out around 8 am. I put a doggie rain coat on her to help keep her warm and the belly bandages covered her groin.

 I had bed pads on the floor of the van. I fed her during the day in the van.  I could lift her butt to help her in but could not lift her down.   I had to use the wheelchair lift to get her down from the van. I used a Bed Sled to move her around inside the van.  Tippy came back into the house every day around 4 pm. 

Life was difficult for Tippy and time draining for me, but I loved her so much.

The last Saturday Tippy was with me, when it was time for her to come into the house, I used the Bed Sled to pull her over to the door of the van and onto the wheelchair lift.  I got her down to the ground and slid her off the lift.  She was still not able to get up.  I could not lift or carry her. I stood in the street in front of my house and flagged down a couple neighbors to help me get her into the house.

They carried her on the Bed Sled onto the wheelchair elevator so I could get her upstairs. I dragged her off the elevator into the house and left her lay.  Awhile later she got up and went into the living room to lie on the bed pad there.  That was where she stayed most of the night.  She was able to get up and walk to the wheelchair elevator twice during the night to urinate in the yard.  But she had such a hard time of it.  She collapsed on the sidewalk coming back to the house.  I was able to help her up but could not carry her. She managed to walk back onto the elevator and we went back into the house. 

She was the same the next day.  She wanted to go back to the van but I could not count on having neighbors handy to move her again so made her stay in the house. 

That night, Sunday, I emailed the vet telling him her condition and requested he put her to sleep the next morning.  I requested he do the job in the van so she would not get excited or anxious.  She always barked and made an excited fuss when we went to the vet.  Now I did not want to make it more difficult for her. 

The vet and his assistant were wonderful.  They climbed into the van with Tippy, checked her over and administered the drug to calm her down.  This alone nearly put her down.  Then they administered the final drug and within minutes she was gone.  So peaceful.  I think Tippy stayed on with me as long as she could.  But she was tired and ready to go.

She is now buried in our yard alongside Tobie, her brother who died 2 years ago from another disease.  I picture them playing together again with no pain of arthritis or hip dysplasia. I miss her and Tobie.

The 4 kittens I wrote about last year are still here.  The Lord works in ways we cannot imagine.  Now that Tippy is gone, the cats (they are no longer kittens) fill the void.  Don asks “where’s the cats?” now, instead of “Where’s Tippy?”